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User Profile
I have Ocular Myathenia and am a 57 year old British interior designer working in Jeddah Saudi Arabia.I suddenly got double vision in Feb 2007. After numerous visits to many doctors it was finally suggested that I had Ocular Myasthenia in March and I started Mestinon experimenting on different doses.
In April 2007 I had had little or no improvement And went to an eye specialist hospital In the capital Riyadh, they also suggested Myasthenia and to continue experimenting with the Mestinin. After 2 visits to Riyadh I decided to stop going there as it meant a 600 mile air journey in the morning and back again in the evening which wore me out.
My Neuro in Jeddah, who was the first to suggest Myasthenis was the best of all the doctors I visited. I only went Dr shopping because I was in denial and refused to believe that I had Myasthenia. My Jeddah Neuro wanted me to start Preds but I refused. I asked him to arange an appointment at a Myastheia center in my home country and he did that for me. I went back to The UK in May 2007
Preds were prescribed and I fully recovered in 4 weeks on a dosage of 25 mg every other day with no double vision or pstosis. I had one small blip when I returned to Saudi when the double vision came back The preds were upped a little to 35 Mg every other day.i think this was due to the very hot weather here The night I arrived back it was 48 degrees centigrade.
I have now been stable with no symptoms at all for two and a half months and my neuro says he may decrese the preds 5 mg in another 3 weeks from now which will be 22 Sept 2007
My email address is allieb2000@hotmail.com Please feel free to contact me.
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