User Name: Hammie

ICQ:

Hello.

I'm a new member who is just finding their feet here. I would like to get to know of other congenics. I'm the only one I know at the moment.

Well that not strictly true. I've read the Article by Michelle Watson September 1997 found on this website, and would like to say hello to her. We share other health similarities other than Congenital Mayasthenia.

I find all Myasthenics etc have their story, I too have a story. After living with Myasthenia for 25-30 years I was told I didn't actually have Myasthenia Gravis!

I was noticed to be ill pretty much from birth, started really fighting for my life from 6 months until nearly 5 years old. Tracheostomies, Life support machines etc

I was finally diagnosed at 5 years old thanks to a article in the Readers Digest titled "The Mystery Illness", read by a family member and then given to the Drs by my Dad. Life improved dramatically but still had some down times and very bad times.

There is loads in between but I wish to Fast forward to a week after my 30th Birthday. A particular milestone for me as Drs had earlier in my life pointed out I wouldn't live to see my 30th Birthday! I'm now a young 34! Anyway going back to that week after my 30th Birthday, it was then I was told I definately had Congenital Myasthenia, and I have been living as a Congenic ever since. I often thought of life without Myasthenia Gravis. Maybe one day it would disappear. I didn't quite mean this though.

Take Care. Adam,

P.S What are the odds of meeting a complete stranger in the middle of nowhere and finding out they too had Myasthenia. I wouldn't even take a bet. Not even now, but I did!