User:	JohnnyG
Website:	bytesandbikes.org

June 2000 had glandular fever, never really got better.

5 years of fatigue, batteries running out after a short walk, neck pain, eye pain, tightness in chest.

In a really good phase I mysteriously started seeing double, this led to my diagnosis in October 2005 of MG, as a result of an EMG test.

AChR negagive
MuSK negative
Thymus normal.

Drugs:
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Currently take 60mg of mestinon first thing. Some days take another 60mg if I feel the need.

150mg of azathioprine daily.

20mg prednisone daily.

October 16th 2005 had 5 days of IvIg. Two weeks later I am feeling fit as flea. Droopy eyelid is much improved and double vision is a little better.

December 12th 2005 another 5 days of IvIg.

Living in Ottawa, Canada.

I just moved to Ottawa from Ireland in October 2008. I'm about to find out how MG reacts to cold weather.

I've had a few attempts at lowering the prednisolone below 20mg, but so far no joy. The move to Ottawa has been pretty hectic, so not a good time to experiment lowering the drugs, but I am hoping as we get settled here I will have a less stressful life and be able to have another go.

johnnyg.guestemail@mga-charity.org

Last update: October 2008