User:	kerryW
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Age 37.
Two sons 5 and 10 with CMS
Acetylcholine receptor deficiency. Both boys use wheel chairs,
10 year old uses 45 mg Mestinon 3 hourly and 30 mg at 4.00AM and 5 mg 3-4 DAP 4 times a day.
Also uses Nippy ventilator at night.
Has needed intervention from ICU on four occasions. Now has open access to the high dependancy unit.
5 year old uses 20 mg mestinon 4 times a day.
Both boys have trouble chewing/swallowing and their weakness fluctuates enormously throughout the day.
Husband also has CMS. Works full time. Walks reasonable distances. 15mg of neostigmine 4 times a day. Occaionally 3-4 DAP (when talking alot)
Go to Oxford once a year for review.
Also reviewed at University Hospital of Wales at a muscle clinic.