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| User: | gemini 60 |
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I am 48 year old female with 2 grown up son kept going to the dotor telling him i wasn,t well and kept getting infections and really tired he kept telling me it was stress and I had lost confidence in my health the more i did the more tired and the worse I was
i thought it was me and just plodded on. Working 14 hours a day as a mobile care in 2006 doctors told me I had vertigo couldnt walk had to hold the wall also couldnt use my hands properly kept tripping over and very weak in myself, had brain scan all was fine, chest scan fine, right eye dropped went to options sent a letter to doc, sent to eye hospital. Test shown in jan 2007 had receptors in blood put on mestinon. Had to give up work as I couldn't even do part time on it was to hard for me.
may 2007 transferred to neurology doc put on 16 aza every day and 90mg of steroids every other day for 18 month never worked, cut steroid down in Sept 2008 went on a big dip couldn't walk again. Now July 2009 on 40mg steroids and changed to 2000mg of mycophalate moffatil still can't walk far or do much without getting tired. sweating a very lot clothes end up wet and hair drip,
no one got the answer sent to breathing clinic as I had to go to a&e twice this year because I couldn't breath, test shown everything fine.
Told it's the weight I have put on and I am unconditioned now as i cant do as much, dont think mycophalate are working either going back in August 2009 need some answer been told 5% of people don't react to medication.
sept 2009 cant even stand at sink now to wash pots had blood test to see if mycophenolate are working and now have had them up to 1250mg in a morning and 1,000 in evening waiting to see if there working still on 40mg every other day of steriods
addy adress anderson7893614@hotmail.co.uk if you want to talk contact me
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