Vivi
18 posts
Jul 05, 2010
5:07 AM
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Hello fellow MGers, I have recently started on a relatively new product 'Protos' 2 Mg sachets - (strontium ranelate) taken daily for osteoporosis caused by steroids.
I would be interested in anyone who has taken this drug and whether it has any negative effects on MG. I am unable to take Fosamax due to side effects and am concerned that Protos can cause DVT which is an issue with persons who have mg?
Have been enjoying all the tennis at Wimbledon from wintry Melbourne!
Kind regards to all
Vivi
Vivi
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marjorie
68 posts
Jul 05, 2010
2:35 PM
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hi vivi
i have been taking protos for over 2 years now and have no side affects from it. my calcium count is very good on my bloods that are done 3 weekly.
as long as you take it last thing at night and no other drugs with it like diabex XR as they work against each other. as told by my endocroligst wich i see every 3 months for osto, hiperthoyrdism, and diabetis (from prendizone)
hope this helps
marjorie gold coast
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Vivi
19 posts
Jul 07, 2010
5:53 AM
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Hello Marjorie
Thanks for your feedback, am encouraged to learn that you have not had any side effects from Protos. I seem to have developed a headache after taking it and believe it is a temporary development once my body has adjusted to the medication.
Where are you on the Gold Coast? I often visit Tugan where my son lives.
Kind regards
Vivi
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marjorie
69 posts
Jul 07, 2010
3:24 PM
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hi vivi
i am in burleigh waters beside tree tops shopping centre on reedy creek rd
hope the headaches stop soon for you, as my calcium count on my blood test is great now with calciun tablet with chewable lemon and vit c
cheers marjorie gold coast
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marjorie
71 posts
Jul 13, 2010
2:41 PM
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hi vivi
do you want my phone number for when you next come up to tugan
cheers marjorie g/c
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Vivi
20 posts
Jul 16, 2010
6:17 AM
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Hi Marjorie
It would be lovely to meet up - I will be visiting more frequently as we are expecting our next grandchild in early January.
fyi I have been taking protos for the past week and so far thankfully not side effects although on the net there have been a few adverse comments eg memory loss and thromosis?
Hope you are travelling well
Vivi
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marjorie
73 posts
Jul 18, 2010
3:00 PM
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hi vivi
home phone number 07 55357210
most welcome
cheers marjorie g/c australia
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