alice
381 posts Jun 26, 2009
12:44 AM
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I am an excercise "freak" and a true believer in the beneficial effects of physical excercise. as a physician I alwasys encouraged my patients to do some physical excercise, even when they were down and unwell, and almost all of them reported the benficial effect of going out and walking for thirty minutes before going to bed. I encouraged my husband to start running, and eventually become a pretty good marathon runner. so, it was quite obvious for me, that if I have an illness that causes weakness and muscle fatigue, the best remedy would be training myself to excercise. and the neurologists I asked, that as I now understand did not realize the severity of my illness, encouraged me to do that. it was beneficial in some ways, but quite hazardous in others. and it took me a very long time to understand that pushing myself to the edge of my limit is the worst thing I can do to myself, and instead of recognizing the early signs of fatigue, I saw them as lack of will power, and pushed harder. I now understand that "excercise" for me is going from one room to the other. "going to the gym" is getting my own breakfast, and "weight lifting" is picking up a patient's chart. walking more then a hunderd meters, is a marathon, which can be done rarely, and requires much rest after. the bottom line is that you have to gradually find your own limits, and try to never exceed them for long. excercise is great and very improtant, but make sure that what you do thinking that you are only walking a very short distance is not a marathon for you. I believe that as long as you only have occular MG, you should probably be fine with somewhat more vigorous excercise, that you were capable of doing before, but my suggestion would be to start with a quarter of what you think you can do and then if you feel OK with it, gradually go up, probably to 80% of what you max. ability is, and not exceeding that by too much. hope this helps, alice.
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Hammer
219 posts Jun 26, 2009
6:40 PM
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I had ocular MG for about two years, with severe diplopia. I've been in remission now for about a year. I found that when I ran, the symptoms seemed to get better, but it didn't last for more than a day. I workout now harder than I ever have. I've gained 30 pounds of solid muscle and am limited by my tendons and joints, otherwise I feel I would be lifting some impressive weights. So as long as you are able to, exercise as hard as you want. If it causes problems, back off, but you need to baseline your abilities and going all out is the best way. At least it worked for me and I feel great. So don't give up if you can do it.
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