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MG and Osteoarthritis

Lilia
38 posts
Jun 22, 2009
1:41 PM
Hello to everybody.

I have not been on the forum for a while but it looks like it's been very busy and lots of new members too! I hope you are all doing ok.

I wonder if anyone can give me some information. I was diagnosed with osteoarthritis in October. What pain!! I have tried many pain killers which apart from giving me nasty side effects don't even work. Anyway I have been told that I must have a procedure called denervation where certain nerves are destroyed so that no pain is felt. Has any one here had such a procedure and if so did it affect you MG in any way?

Thank you

Lilia
TinaM
119 posts
Jun 23, 2009
5:23 AM
Lilia

You don't say in which part of the body you have osteoarthritis of? In answer to your question I haven't heard of denervation, but it sounds quite severe to me if it involves killing nerves, so I did a quick google of it. I did have loss of nerve sensation in my leg a few years ago after a steroid injection, which was really scary, as I couldn't walk, my leg was basically numb. I found a lot of treatment relating to muscle spasm & dystonia deneravion on the web but not arthritis, but mine was only a quick search. You will probably find a lot on the web. Whatever happens make sure you ask lots of questions about the risks of losing use of arms/legs etc.. if your nerves are dead!

I have suffered with osteoarthrities of the left hip for 14 years, also have it milder in the right hip and spine. I had a hip replacement last year, my left hip is now good. I take diclofenac for a couple of days when I have a really bad flare up/attack of pain and I find it works.

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Tina
Gloucestershire UK
Lilia
40 posts
Jun 23, 2009
2:34 PM
Hi Tina

Thanks for your comments. Sorry to hear you have suffered with it for so long. Mine started last October in my neck and shoulder and then in myspine and hips. I suffer so badly that I am in constant pain and can hardly walk for the pain. Ifd this procedure works I will be very happy. The problem is I must have a local anaestheic and muscle relaxants prior to the procedure. Two things which are not good for someone with MG.

I'm glad to hear that the hip replacement worked for you.
TinaM
122 posts
Jun 23, 2009
2:55 PM
I'm sure your anaesthetic will be fine if your neurologist consults with the anaesthetist, consultant etc... I need to have the plate out of my leg (had other complications as well), the surgeon won't take it out though until this MG (or whatever) is properly diagnosed. I don't think I'd be comfortable having an anaesthetic anyway until I know it's under control. I'm on mestinon but just keep getting one symptom after another, no one is really managing my medication, other than myself as the initial diagnosis was taken away. I'd recommend a hip replacement to anyone with arthritic pain. I was so restricted before the op. I'm 41, so young for the replacement but the joints they use now last much longer, so my consultant didn't hesitate in doing the op to relieve the pain & give me more movement. Mine's ceramic on ceramic (actually ceramic mixed with alumina), the surface is so hardwearing that they reckon it will last min 30-40 years, there's still a risk of it loosening though. I have actually just started horseriding again it's great. I couldn't do that before the op without severe pain.


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Tina
Gloucestershire UK