As I have posted,I seen my neurologist on Wed ,since yesterday I have felt my breathing getting worse. Today I feel exactly the same as the last time I had to go to the hospital and a chest infection was found. I have no other signs except the sharp pain in my right lung.
My Gp is off so another Gp called me back. I explained things to him and he said he would leave me some antibiotics but that maybe another visit to hospital just to be sure it was an infection.I told him I was to exhausted to go and sit in a hospital for hours to be sent home with what he would give me anyway.
Am I being stupid?Isn't someone with MG more prone to chest infections with no cough or anything else present.I have been very stressed the last couple of days,I just want to feel better not keep getting worse.My neuro is aware of my problems breathing but am still having tests done so no meds as
yet.

Been a bit weepy as well which is doing no good!

Take care all

Blessyou, I hope you are not alone, do you have someone with you? I know how scarey the symptoms of M.G. are. Any infection can drag you right down in the dumps. I have had MG for nearly 50 years!! I know this is easy to say and harder to do but try to relax and stay calm. Stress only makes MG worse. Why is it always the weekend things go wrong. If you are really worried I would phone the NHS help line and talk to someone. Tell them how crappy and weak you are feeling. If you do feel worse DO NOT ignore it. Phone a doctor it IS there job to look after you after all!!.

Take care

Thankyou both for your replies.I had an uncomfortable night but have started the antibiotics the GP left me.The last time I was at the hospital my neurology appointment was coming up so they seemed happy enough to let me home.My first visit to my neurologist was in July and when he heard I had been to A&E.He put the number of the neurology ward on the leaflet for me if I should have breathing problems or paralysis of my limbs .
It's so good to be able to read your posts and get advice about MG.I know that not all doctors know a lot about it.i do worry when I read about crisis and. It does scare me. Hopefully I will have the EMG and maybe start on the meds to make a difference.
50 years is so long to have to deal with MG,I will try and rest,it's hard not stressing over it though.

Thanks again your replies are very helpful

Alx

Greetings from the US

Sorry to hear you're not great.

If you are having any significant problems breathing don't hesitate and take yourself to A&E - its not worth taking any risk with MG.

Look after yourself

Hope you are feeling better and getting best treatment.

Thankyou for your reply,I hope you are having a great time while your in the US.I am sure you are doing your very best.My husband and 4 others are going tomorrow for a 5 week road trip,I am sure they will have a ball.I am feeling a little better with my breathing,trying to stay calm and hoping it all eases up,enjoy the rest of your time away.
Hi Marita,
Thankyou for your reply,I have read about Mg and how
antibiotics can affect it. The GP normally gives out Amoxicillin for chest infections.I take quite a lot of medication already as I have Fibromyalgia and was worried that any meds given for MG would react with them.My neuro has the list and had a look over it when I first saw him.He said that they would be ok.I think perhaps after the EMG test is done he may start me on mestinon,I'm not sure how good it is at showing anything up as my first bloods came back negative.I will see him in a few weeks again and hopefully he will then decide on treatment for me.Its a scary thought that the antibiotics given to help an infection can have an adverse affect on MG.I know the GP's don't always realise this.I would be grateful if you could give me the link to the meds site,it would be very helpful.

Thankyou again for your replies, they are much appreciated,I will try and rest up and hopefully things will settle down a little.I hope I am not going to be bothered by chest infections every couple of months.

Take care and look after yourselves,

Alx