MGA Forum>
Seen nuerologist today.
Anyone may read messages posted here, but if you wish to post messages you must join the Forum. If you are not a member of the Forum please READ THE NOTES on the Main Forum Page before Joining.
Alx

12 post s
11-Jul-2008
1:21 PM
Hi Eeryone,

Just wanted to give an update on my appointment today,If you have read my last couple of posts I was waiting on this appointment since April.Anyways I seen him today and himself and his nurse were really lovely.He started by asking me about my symptoms,took my blood pressure then checked my eyes and did a few tests with those.I was then examined,reflexes tested and also my strength pushing agains him in different ways.We had a chat and he said that yes I do have MG so he got his nurse to take blood samples to be sent from here(Ireland) to Oxford to be tested.He talked about starting me on mestinon but said it would give me a runny tummy and I would see him nxt month and he would start it then.We talked about my eyes and as it was morning they weren`t as bad as they would be even in the afternoon,my GP has seen them half closing.I am def not allowed to drive just now till meds are sorted but my GP had already ask me not to drive since I was refered in April.He then got his nurse to get me one of the associations leaflets which she said was the most up to date one and also wrote the direct number to the neurology ward and told me should my symptoms get worse,breathing paraylis,my daughter should ring straight through to them.As my daughter is not long qualified as a nurse she has dne a placement on that very ward.He was going on holidays but made it clear that I should get in touch with the hospital.So I have rang up today and requested one of your information packs.Looks like I have a battle on my hands with my FM and now this although he did say 9 out of 10 people generally do well on medication.He is a very highly respected nuerologist over here and I must say I really was overwhelmed at both himself and his nurses kindness towards me.So thanyou everyone for your support in the past and I will now be a more frequent visitor.Strange thing is,I thought when he would dx me I would be in floods but I wasn`t I was calm,maybe to calm think I was in a bit of a dreamlike state for a bit,shock,or whatever but i`m sure the tears will come soon.

Thanks everyone for reading my long post,

Alx

Last Edited on 13-Jul-2008 10:27 AM

Jane77

35 post s
12-Jul-2008
3:13 PM
That sounds a wonderful Neurologist. While it comes mixed emotions right now, at least you know you have someone taking care of you now you have been diagnosed. Thanks for letting us know - it cheers me to hear there are Neurologists that understand MG like this.

Last Edited on 12-Jul-2008 3:14 PM

Alx

13 post s
13-Jul-2008
10:26 AM
Hi Jane,

Thankyou for your reply.My Neurologist was a very nice man.I`m sure I will be seeing him a lot in the future so it will make things easier.I know we have a lot more to talk over at my next appointment but I have been better than I thought about the dx.I suppose I already knew that it would be MG as the symptoms were unmistakable so at least there was no going back and forth.The meds will be the next thing.I`m not sure what the procedure is about the thymus gland,whether they x-ray and check all that out.Lots more questions to ask but hopefully like he said controlling it nowadays with meds its pretty good.

Thanks again

Alx

ORIE

117 post s
14-Jul-2008
6:37 AM
Alx,
Glad to hear your appointment was good. Often Dr appointments are so frustrating. I am sorry you have MG, but glad you will now get the medical help you need to start to feel better. Getting on the right medication should make a world of difference. For me it meant my eyes staying open much of the time! Good luck.
Orie
Alx

15 post s
22-Jul-2008
2:24 AM
Hi ORIE,
Thankyou for your reply,I hope things will improve down the line a bit ,for now everything is a bit strange,Its good to know that the medication helped you and hopefully it will do its job when it cmes to me.

Thankyou

Alx